r/guillainbarre
4k members
r/guillainbarre is a subreddit with 4k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses gbs, recovery, symptoms, cidp, and diagnosis.
/r/guillainbarre is a small, welcoming community for those who have survived or are currently battling Guillain Barre Syndrome or Chronic Inflammatory Demyelinating Polyneuropathy, the family/friends of patients and survivors, and for those curious about the disease. We welcome anything related to GBS/CIDP: questions, insightful articles or news, stories about experiences or just general ranting (because, let's be honest, sometimes it sucks!). Feel free to grab a flair and share (or vent!) away.
Popular Themes in r/guillainbarre
#1
Pain & Anger
: "Probably my last post/update (sorry for being a downer)"
9 posts
#2
Advice Requests
: "Some of my story and asking for recovery tips"
4 posts
Popular Topics in r/guillainbarre
#1
Gbs
: "Progress - Gbs Miller Fisher Syndrome (65 days since diagnosis) "
122 posts
#2
Recovery
: "Positive Recovery so far 🙏🏼"
69 posts
#3
Symptoms
: "Frustrated By Worsening Symptoms w/ No Diagnosis"
27 posts
#4
Cidp
: "2.5 years out, just walked without aids"
19 posts
#5
Diagnosis
: "Progress - GBS Miller Fisher Syndrome (65 days since Diagnosis) "
13 posts
#6
Pain
: "Daily Pain and spasms years after GBS—has anyone found anything that helped?"
7 posts
#7
Treatment
: "My 54-Year-Old Mother Diagnosed with Severe GBS"
7 posts
#8
Ivig
: "Positive recovery so far 🙏🏼"
7 posts
#9
Support
: "A post about my mum, who had GBS and is 82 years old."
5 posts
#10
Nerve
4 posts
Flair Used in r/guillainbarre
#1
Improvement and Recovery
: "A year out"
23 posts
#2
Advice and Support
: "How to handle asking for emotional support during recovery"
15 posts
#3
Experience
: "My GBS story"
12 posts
#4
Advice
: "PSA: New treatment option (Vyvgart Hytrulo) for those recently diagnosed with GBS or CIDP"
5 posts
#5
Questions
: "Does anyone else feel numb well after the fact?"
3 posts
#6
Mental Health
: "Round 2"
3 posts
#7
Support
: "Prayers needed for my girlfriend Natalie please!!"
2 posts
#8
News
: "64 Cases of guillain-barre have been recorded in G@z@ !!!"
1 post
#9
Meta
: "Research on medicating Guillain-Barre syndrome and autoimmune symptoms"
1 post
Member Growth in r/guillainbarre
Yearly
+856 members(26.1%)
About
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Last updated: June 21, 2026