r/myelofibrosis

391 members
r/myelofibrosis is a subreddit with 391 members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses myelofibrosis, treatment, study, research, and transplant.
A community for people who suffer from myelofibrosis, a blood disorder in which the bone marrow is replaced by fibrous scar tissue.

Popular Themes in r/myelofibrosis

#1
Pain & Anger
: "i am absolutely terrified."
2 posts
#2
Advice Requests
: "Wife got diagnosed, trying to figure out more info... maybe find her a community?"
2 posts
#3
Opportunities
: "Invitation to Participate in our Myelofibrosis Study (Compensation Provided)"
2 posts
#4
Solution Requests
: "How can I get access to therapies? My mother was diagnosed with PM and she does not have access to medication"
1 post

Popular Topics in r/myelofibrosis

#1

Myelofibrosis

: "New treatment for Myelofibrosis patients FDA approved"
13 posts
#2

Treatment

: "New Treatment for Myelofibrosis patients FDA approved"
7 posts
#3

Study

: "Invitation to Participate in our Myelofibrosis Study (Compensation Provided)"
5 posts
#4

Research

: "Duke Research Study"
3 posts
#5

Transplant

: "Success stories from Transplant?"
3 posts
#6

Bone Marrow

: "Bone Marrow fibrosis = myleofibrosis?"
2 posts
#7

Information

: "Myelofibrosis Informational charts"
2 posts
#8

Symptoms

: "Referred pain, enlarged liver and spleen"
2 posts
#9

Event

: "Myelofibrosis Event with a Myeloproliferative Disorder Specialist"
2 posts
#10

Clinical Trial

: "MPN Clinical Trials, 2022 Update"
2 posts

Member Growth in r/myelofibrosis

Yearly
+34 members(9.5%)

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About

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Last updated: June 14, 2026