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r/rarediseases is a subreddit with 6k members. Its distinguishing qualities are that the community is medium in size.
This is a place for people who have rare diseases, and for friends and family of people with a rare disease. Navigating the healthcare system when you have an unusual problem can be frustrating. Dealing with symptoms the people around you do not understand can be lonely. Even if no one here has the same rare disease, there are people here who have had to deal with the same hurdles and aggravations.
Popular Themes in r/rarediseases
#1
Pain & Anger
: "Undiagnosed illness"
12 posts
#2
Solution Requests
: "Most needed resources for Primary Ciliary Dyskinesia patients?"
1 post
#3
Advice Requests
: "Feedback requested from people whose rare disease affects their facial movement"
1 post
#4
Money Talk
: "How are we paying for iur surgeries? PVMS/TGCT rare disease here"
1 post
Popular Topics in r/rarediseases
#1
Rare Disease
: "I got diagnosed a Rare Disease with only 300 people worldwide and my doctor ghosted me."
51 posts
#2
Symptoms
: "Immense mom guilt for passing on kidney disease to my son"
27 posts
#3
Rare Diseases
: "How do y'all feel about parents of kids with Rare Diseases in rare disease forums?"
24 posts
#4
Treatment
: "Immense mom guilt for passing on kidney disease to my son"
13 posts
#5
Disease
: "My Son Has a Deadly Disease. Trump’s Health-Care Plans Might Kill Him"
8 posts
#6
Undiagnosed
: "Undiagnosed illness"
8 posts
#7
Syndrome
: "Fasciculation Syndrome"
5 posts
#8
Diagnosis
: "Doctors missleading"
4 posts
#9
Rare
: "Hemihypertrophy Rare disability "
4 posts
#10
Undiagnosed Condition
: "7 Years with Undiagnosed Condition, Anxiety, Palpitations, Shortness of Breath"
4 posts
Member Growth in r/rarediseases
Yearly
+2k members(38.9%)