r/rarediseases

A community for people with rare diseases and those who want to know more about them. If you need help finding a patient group, share the disease and country and we can help you search. We would be surprised if anyone here shares the same disease as anyone else. You won’t find that kind of help here or medical advice. You will find kindred spirits that are dealing with something that can feel very lonely. But you won’t find specific answers about your disease.