r/Erythromelalgia is a subreddit with 4k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses erythromelalgia, diagnosis, pain, symptoms, and em, and they frequently recommend/review doctor.
Erythromelalgia is a rare and frequently devastating disorder that typically affects the skin of the feet or hands, as well as other parts of the body, and causes visible redness, intense heat and burning pain.
The term erythromelalgia describes the syndrome: erythros (redness), melos (extremity) and algia (pain). An alternate name is “erythermalgia” that emphasizes the thermos (heat) – an essential part of the syndrome. Many sufferers refer to erythromelalgia as simply, EM.
Popular Themes in r/Erythromelalgia
#1
Pain & Anger
: "Erythromelalgia destroyed my life"
18 posts
#2
Advice Requests
: "Help!!!!"
9 posts
#3
Solution Requests
: "TREATMENT!!! I found a treatment!!!"
1 post
#4
Self-Promotion
: "My success story"
1 post
Popular Topics in r/Erythromelalgia
#1
Erythromelalgia
: "Thermal images of Erythromelalgia in my toes"
92 posts
#2
Diagnosis
: "Should I Push For Diagnosis?"
29 posts
#3
Pain
: "Is this Erythromelalgia? Can the Pain be mild/moderate?"
25 posts
#4
Symptoms
: "Does anyone else experience Symptoms in places other than your hands and feet?"
19 posts
#5
Em
: "CURSE YOU ERYTHROMELALGIA"
17 posts
#6
Flare
: "I captured 10 minutes of a Flare and sped it up to 50 seconds."
16 posts
#7
Treatment
: "Treatment!!! I found a Treatment!!!"
16 posts
#8
Feet
: "Does anyone else’s Feet look like this?"
11 posts
#9
Redness
: "Cleaning/manual tasks cause Redness and pain"
11 posts
#10
Flares
: "Anyone else’s veins pop out like crazy during Flares?"
10 posts
Products Discussed in r/Erythromelalgia
Doctor
1 review
#1
UCLA Health
5.0★ from 1 review
Flair Used in r/Erythromelalgia
#1
Is this Erythromelalgia?
: "I guess it’s my turn…."
39 posts
#2
Advice
: "Your erythromelalgia might be secondary."
17 posts
#3
Questions about Erythromelalgia
: "anyone else get flare ups from just sunlight?"
15 posts
#4
Questions about Treatment and Medication
: "Is anyone else on stimulants that affect their symptoms?"
6 posts
Member Growth in r/Erythromelalgia
Yearly
+662 members(18.1%)
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Last updated: June 16, 2026