r/Erythromelalgia is a subreddit with 5k members. The most common kinds of discussions are advice requests and pain & anger, and the community frequently discusses erythromelalgia, diagnosis, pain, symptoms, and em, and they frequently recommend/review doctor.
Erythromelalgia is a rare and frequently devastating disorder that typically affects the skin of the feet or hands, as well as other parts of the body, and causes visible redness, intense heat and burning pain.
The term erythromelalgia describes the syndrome: erythros (redness), melos (extremity) and algia (pain). An alternate name is “erythermalgia” that emphasizes the thermos (heat) – an essential part of the syndrome. Many sufferers refer to erythromelalgia as simply, EM.
Popular Themes in r/Erythromelalgia
#1
Advice Requests
: "Help!!!!"
15 posts
#2
Pain & Anger
: "Erythromelalgia destroyed my life"
12 posts
#3
Solution Requests
: "TREATMENT!!! I found a treatment!!!"
1 post
#4
Self-Promotion
: "My success story"
1 post
#5
News
: "Anyone heard about new trial for erythromelalgia? Read this about a potential new treatment from swedish Pila pharma"
1 post
Popular Topics in r/Erythromelalgia
#1
Erythromelalgia
: "Erythromelalgia destroyed my life"
92 posts
#2
Diagnosis
: "Obviously I will get checked out by a professional, but does this look like Erythromelalgia?"
29 posts
#3
Pain
: "Is it Always Painful/Burning?"
25 posts
#4
Symptoms
: "Does anyone else experience Symptoms in places other than your hands and feet?"
19 posts
#5
Em
: "Sunburn preventing Em flare ups"
17 posts
#6
Flare
: "I captured 10 minutes of a Flare and sped it up to 50 seconds."
16 posts
#7
Treatment
: "Treatment!!! I found a Treatment!!!"
16 posts
#8
Feet
11 posts
#9
Redness
: "Cleaning/manual tasks cause Redness and pain"
11 posts
#10
Flares
10 posts
Products Discussed in r/Erythromelalgia
Doctor
1 review
#1
UCLA Health
5.0★ from 1 review
Flair Used in r/Erythromelalgia
#1
Is this Erythromelalgia?
: "Does this look like erythromelalgia?"
35 posts
#2
Advice
: "Erythromelgia and Raynaud's double hit!"
18 posts
#3
Questions about Erythromelalgia
: "Do you get flare-ups after eating?"
16 posts
#4
Questions about Treatment and Medication
: "About last night and every night"
7 posts
Member Growth in r/Erythromelalgia
Yearly
+844 members(23.0%)
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Last updated: September 1, 2026