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r/cfs is a subreddit with 54k members. Its distinguishing qualities are that the community is large in size, and has crazy activity.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME).
ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Popular Themes in r/cfs
#1
Pain & Anger
: "I can’t believe this many people are suffering from this horrific disease and we don’t have specialist care never mind treatments. It’s unfathomable that this is happening. I can’t believe we are living in this nightmare. "
44 posts
#2
Solution Requests
: "Symptom tracker :D"
4 posts
#3
Advice Requests
: "Can someone explain on a physiological level, what is happening to us during PEM?"
3 posts
#4
News
: "Largest global single-disease whole genome sequencing study for ME/CFS announced"
2 posts
#5
Money Talk
: "If money was no object, what tests and treatments would you think are worth trying for ME/CFS? "
1 post
Popular Topics in r/cfs
#1
Cfs
: "Dating with Cfs"
82 posts
#2
Fatigue
: "I'm tired of Fatigue as a symptom being taken ever so lightly"
25 posts
#3
Treatment
: "Patient-Reported Treatment Outcomes in ME/CFS and Long COVID"
19 posts
#4
Symptoms
: "omg wikipedia puts us on the home page?!"
16 posts
#5
Research
: "21 new Research projects in Germany starting this year. "
9 posts
#6
Illness
: "I said to my doctor I'd read me/cfs sufferers have one of the lowest Quality of Life scores out of any Illness, including Stage 4 cancer, and they instantly said..."
8 posts
#7
Doctor
: "I said to my Doctor I'd read me/cfs sufferers have one of the lowest Quality of Life scores out of any illness, including Stage 4 cancer, and they instantly said..."
6 posts
#8
Sleep
: "Chronic Illness with children - I just need them to let me Sleep"
6 posts
#9
Support
: "A cure for boredom - gift for fellow CFS sufferers"
6 posts
#10
Pacing
: "I truly believe physical Pacing is only 50% of the battle. Cognitive Pacing like limiting phone use and reading is the other 50%. "
5 posts
Member Growth in r/cfs
Daily
+17 members(0.0%)
Monthly
+984 members(1.8%)
Yearly
+10k members(23.7%)
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