r/ehlersdanlos is a subreddit with 122k members. The community frequently discusses struggling, eds, frustrating, hard time, and tired, and they frequently recommend/review sandal recommendations, electrolyte recommendations, and pillow, and the most common flair used is similar experiences?, seeking support, general, rant/vent, and helpful tips, tricks, and products .
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
Popular Topics in r/ehlersdanlos
#1
Struggling
29 posts
#2
Eds
23 posts
#3
Frustrating
15 posts
#4
Hard Time
14 posts
#5
Tired
14 posts
#6
Worst
13 posts
#7
Hate
12 posts
#8
Heds
11 posts
#9
Pain
9 posts
#10
Diagnosis
6 posts
Products Discussed in r/ehlersdanlos
Sandal Recommendations
76 reviews
#1
Birkenstock
4.8★ from 19 reviews
#2
Teva
4.9★ from 12 reviews
#3
Vionic
4.8★ from 4 reviews
Electrolyte Recommendations
56 reviews
#1
LMNT
4.3★ from 9 reviews
#2
Liquid IV
4.3★ from 6 reviews
#3
Nuun
4.0★ from 4 reviews
Pillow
34 reviews
#1
Cervical Pillow
4.5★ from 2 reviews
#2
Squishmallows
5.0★ from 2 reviews
#3
IKEA
4.5★ from 2 reviews
Flair Used in r/ehlersdanlos
#1
Similar Experiences?
: "Do you know where your jaw belongs?"
36 posts
#2
Seeking Support
: "My partner does not like when I talk about EDS or my symptoms"
32 posts
#3
General
: "Three years of adapting my way back to the stage"
31 posts
#4
Rant/Vent
: "Hot Girls use Mobility Aids 🌼🩵"
30 posts
#5
Helpful Tips, Tricks, and Products
: "How do I stop this from happening"
23 posts
#6
Discussion
: "There's an Spider-Man with Ehlers-Danlos and I would like it to appear on the second part of Miles Morales Across the Spiderverse"
16 posts
#7
Lighthearted
: "Iron Flame dedication 🦓"
7 posts
#8
Resources/News/Research
: "SFN in hEDS: we might need a shift in advocacy"
5 posts
#9
Good News!
: "Today I learned I'm a zebra"
4 posts
#10
Life and Relationships
: "Share your No 1 tip for Good Life with EDS"
3 posts
Member Growth in r/ehlersdanlos
Yearly
+28k members(29.8%)
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About
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This page gives a focused view of r/ehlersdanlos, including current member size, discussion patterns, product reviews, and related communities to explore.
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Last updated: September 6, 2026