r/ehlersdanlos is a subreddit with 120k members. The community frequently discusses struggling, eds, frustrating, hard time, and tired, and they frequently recommend/review sandal recommendations, electrolyte recommendations, and pillow, and the most common flair used is seeking support, similar experiences?, helpful tips, tricks, and products , discussion, and general.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
Popular Topics in r/ehlersdanlos
#1
Struggling
29 posts
#2
Eds
23 posts
#3
Frustrating
15 posts
#4
Hard Time
14 posts
#5
Tired
14 posts
#6
Worst
13 posts
#7
Hate
12 posts
#8
Heds
11 posts
#9
Pain
9 posts
#10
Diagnosis
6 posts
Products Discussed in r/ehlersdanlos
Sandal Recommendations
76 reviews
#1
Birkenstock
4.8★ from 19 reviews
#2
Teva
4.9★ from 12 reviews
#3
Vionic
4.8★ from 4 reviews
Electrolyte Recommendations
56 reviews
#1
LMNT
4.3★ from 9 reviews
#2
Liquid IV
4.3★ from 6 reviews
#3
Nuun
4.0★ from 4 reviews
Pillow
34 reviews
#1
Cervical Pillow
4.5★ from 2 reviews
#2
Squishmallows
5.0★ from 2 reviews
#3
IKEA
4.5★ from 2 reviews
Flair Used in r/ehlersdanlos
#1
Seeking Support
: "Am I just doomed to always have extreme coathanger pain/tension/muscle knots?"
48 posts
#2
Similar Experiences?
: "Does anyone else feel like their EDS has caused financial hurdles?"
33 posts
#3
Helpful Tips, Tricks, and Products
: "ISO: a workplace friendly version of this TikTok hack"
29 posts
#4
Discussion
: "There's an Spider-Man with Ehlers-Danlos and I would like it to appear on the second part of Miles Morales Across the Spiderverse"
22 posts
#5
General
: "Why I Use So Much Red In My Art (Inspired By Medical Emergencies)"
22 posts
#6
Rant/Vent
: "found out my sister has never believed me"
17 posts
#7
Lighthearted
: "My Gyno was the one that put hEDS in my diagnosis files"
5 posts
#8
TW: Pregnancy/Infertility
: "Anxiety about having kids"
3 posts
#9
Resources/News/Research
: "Dental Research Needed"
3 posts
#10
TW: Other
: "Does Anyone Else Get Scared When a Family Member Has an Aneurysm or Organ Rupture?"
2 posts
Member Growth in r/ehlersdanlos
Yearly
+28k members(29.9%)
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About
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Last updated: August 14, 2026