r/ehlersdanlos is a subreddit with 119k members. The community frequently discusses struggling, eds, frustrating, hard time, and tired, and they frequently recommend/review sandal recommendations, electrolyte recommendations, and pillow, and the most common flair used is seeking support, similar experiences?, helpful tips, tricks, and products , general, and rant/vent.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
Popular Topics in r/ehlersdanlos
#1
Struggling
29 posts
#2
Eds
23 posts
#3
Frustrating
15 posts
#4
Hard Time
14 posts
#5
Tired
14 posts
#6
Worst
13 posts
#7
Hate
12 posts
#8
Heds
11 posts
#9
Pain
9 posts
#10
Diagnosis
6 posts
Products Discussed in r/ehlersdanlos
Sandal Recommendations
76 reviews
#1
Birkenstock
4.8★ from 19 reviews
#2
Teva
4.9★ from 12 reviews
#3
Vionic
4.8★ from 4 reviews
Electrolyte Recommendations
56 reviews
#1
LMNT
4.3★ from 9 reviews
#2
Liquid IV
4.3★ from 6 reviews
#3
Nuun
4.0★ from 4 reviews
Pillow
34 reviews
#1
Cervical Pillow
4.5★ from 2 reviews
#2
Squishmallows
5.0★ from 2 reviews
#3
IKEA
4.5★ from 2 reviews
Flair Used in r/ehlersdanlos
#1
Seeking Support
: "Diagnosed in 2021..."de-diagnosed" in 2026."
39 posts
#2
Similar Experiences?
: "Maybe too niche"
31 posts
#3
Helpful Tips, Tricks, and Products
: "Your favorite adaptive devices/aids/things that make life a little easier"
25 posts
#4
General
: "IT ALL MAKES SENSE NOW"
19 posts
#5
Rant/Vent
: "Things I forget aren't normal"
17 posts
#6
Discussion
: "EDS conference posts"
11 posts
#7
Lighthearted
: "Lost a battle to a bathroom door at a barnes and noble but was saved by the sweetest person"
6 posts
#8
Memes and Off-Topic Saturday
: "Inspired by my ortho appts this week"
5 posts
#9
Resources/News/Research
: ""Emerging Clinical Concepts in Pain Management of Ehlers-Danlos Syndrome""
5 posts
#10
Work, School, and Accommodations
: "What Jobs won’t hurt me?"
4 posts
Member Growth in r/ehlersdanlos
Yearly
+28k members(30.2%)
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About
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This page gives a focused view of r/ehlersdanlos, including current member size, discussion patterns, product reviews, and related communities to explore.
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Last updated: July 30, 2026