r/ehlersdanlos is a subreddit with 117k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses struggling, eds, frustrating, hard time, and tired, and they frequently recommend/review sandal recommendations, electrolyte recommendations, and pillow.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
Popular Themes in r/ehlersdanlos
#1
Pain & Anger
: "It hurts when I exercise. It also hurts if I don't exercise just in different ways. This is exhausting."
18 posts
#2
Advice Requests
: "Does anyone know/have resources about what the normal amount of body hurting as you get older should be vs what is probably concerning?"
17 posts
#3
Solution Requests
: "Knee Braces for Partner"
1 post
Popular Topics in r/ehlersdanlos
#1
Struggling
29 posts
#2
Eds
: "i think i’m going to give up on getting a hEds evaluation"
23 posts
#3
Frustrating
15 posts
#4
Hard Time
14 posts
#5
Tired
14 posts
#6
Worst
13 posts
#7
Hate
12 posts
#8
Heds
: "Narrow pallet with Heds"
11 posts
#9
Pain
: "Grumpy from Pain + Trauma"
9 posts
#10
Diagnosis
6 posts
Products Discussed in r/ehlersdanlos
Sandal Recommendations
76 reviews
#1
Birkenstock
4.8★ from 19 reviews
#2
Teva
4.9★ from 12 reviews
#3
Vionic
4.8★ from 4 reviews
Electrolyte Recommendations
56 reviews
#1
LMNT
4.3★ from 9 reviews
#2
Liquid IV
4.3★ from 6 reviews
#3
Nuun
4.0★ from 4 reviews
Pillow
34 reviews
#1
Cervical Pillow
4.5★ from 2 reviews
#2
Squishmallows
5.0★ from 2 reviews
#3
IKEA
4.5★ from 2 reviews
Flair Used in r/ehlersdanlos
#1
Seeking Support
: "It hurts when I exercise. It also hurts if I don't exercise just in different ways. This is exhausting."
44 posts
#2
Similar Experiences?
: "32F, Just delivered a poop baby and destroyed my pelvic floor & caused fissure.."
35 posts
#3
General
: "The Stuff of the Devil"
29 posts
#4
Rant/Vent
: "It was never growing pains"
26 posts
#5
Helpful Tips, Tricks, and Products
: "Pain Scale for Chronic Pain"
25 posts
#6
Discussion
: "How do I stop telling people I'm disabled?"
15 posts
#7
Lighthearted
: "kintype"
8 posts
#8
Work, School, and Accommodations
: "Anyone else unemployed?"
3 posts
#9
Rare Subtypes
: "cEDS Skin"
3 posts
#10
No Advice, Please
: "Does anyone know/have resources about what the normal amount of body hurting as you get older should be vs what is probably concerning?"
2 posts
Member Growth in r/ehlersdanlos
Yearly
+27k members(30.6%)
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About
GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.
This page gives a focused view of r/ehlersdanlos, including current member size, discussion patterns, product reviews, and related communities to explore.
This data is synced periodically so insights stay current and useful for ongoing research.
Last updated: June 30, 2026