r/ehlersdanlos is a subreddit with 126k members. The community frequently discusses struggling, eds, frustrating, hard time, and tired, and they frequently recommend/review sandal recommendations, electrolyte recommendations, and pillow, and the most common flair used is similar experiences?, seeking support, helpful tips, tricks, and products , general, and rant/vent.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
Popular Topics in r/ehlersdanlos
#1
Struggling
29 posts
#2
Eds
23 posts
#3
Frustrating
15 posts
#4
Hard Time
14 posts
#5
Tired
14 posts
#6
Worst
13 posts
#7
Hate
12 posts
#8
Heds
11 posts
#9
Pain
9 posts
#10
Diagnosis
6 posts
Products Discussed in r/ehlersdanlos
Sandal Recommendations
76 reviews
#1
Birkenstock
4.8★ from 19 reviews
#2
Teva
4.9★ from 12 reviews
#3
Vionic
4.8★ from 4 reviews
Electrolyte Recommendations
56 reviews
#1
LMNT
4.3★ from 9 reviews
#2
Liquid IV
4.3★ from 6 reviews
#3
Nuun
4.0★ from 4 reviews
Pillow
34 reviews
#1
Cervical Pillow
4.5★ from 2 reviews
#2
Squishmallows
5.0★ from 2 reviews
#3
IKEA
4.5★ from 2 reviews
Flair Used in r/ehlersdanlos
#1
Similar Experiences?
: "Flare up on period?"
19 posts
#2
Seeking Support
: "Today I got a heart ultrasound after Geneticist diagnosis. I feel so heartbroken."
16 posts
#3
Helpful Tips, Tricks, and Products
: "Pajama recommendations?"
15 posts
#4
General
: "Accidentally injured by new boyfriend"
14 posts
#5
Rant/Vent
: "tired of the connotation EDS has behind it now"
4 posts
#6
Discussion
: "Is anybody else excessively gentle?"
4 posts
#7
TW: Other
: "I don't know anymore"
2 posts
#8
Resources/News/Research
: "Tarlov Cysts - Any Insight, Exercise Impact, and things to know as I discuss with doc"
2 posts
#9
Friend/Family/Carer Post
: "Long-Distance cycling?"
2 posts
#10
Lighthearted
: "A very non-serious question."
1 post
Member Growth in r/ehlersdanlos
Yearly
+28k members(28.9%)
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About
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Last updated: October 26, 2026