r/eds
34k members
r/eds is a subreddit with 34k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses struggling, looking for a doctor, pain, hate, and symptoms, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "Medical Gaslighting, Gender Bias and the Psychologization of Women’s Pain: Having “Rare” Diseases Isn’t That Rare"
7 posts
#2
Advice Requests
: "Please help me- diagnosed with vEDS and I feel like I’m losing my mind"
7 posts
#3
Solution Requests
: "Best accommodations you use for hEDS?"
2 posts
Popular Topics in r/eds
#1
Struggling
30 posts
#2
Looking For A Doctor
17 posts
#3
Pain
13 posts
#4
Hate
10 posts
#5
Symptoms
8 posts
#6
Eds
7 posts
#7
Flare
6 posts
#8
Tired
5 posts
#9
Knee Brace
4 posts
#10
Heds
3 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: "teeth ???"
45 posts
#2
Venting
: "i don’t think i can roll my eyes harder at this"
29 posts
#3
Suspected and/or Questioning
: "Update to doctor who said people with EDS don’t normally have joint pain"
18 posts
#4
Life Hacks & Tips
: "TIL you can turn regular Rx bottles into easy-open ones"
11 posts
#5
Community Shenanigans
: "THAT'S THE NORMAL RANGE????"
7 posts
#6
Medical Device & Disability Aids
: "Best pillow (system?)"
7 posts
#7
[TW: SENSITIVE SUBJECT MATTER]
: "Still in the ICU. Today they told me its more likely I have VEDS, not HEDS."
6 posts
#8
Resources
: "Researchers just proposed a framework for "neuro EDS""
4 posts
#9
All Victories Are Great Victories
: "My ring splint set is complete!! (covered by insurance)"
3 posts
#10
Newly Diagnosed
: "Joy"
3 posts
Member Growth in r/eds
Yearly
+13k members(61.8%)
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About
GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.
This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.
This data is synced periodically so insights stay current and useful for ongoing research.
Last updated: September 5, 2026