r/eds

35k members
r/eds is a subreddit with 35k members. The community frequently discusses struggling, looking for a doctor, pain, hate, and symptoms, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush, and the most common flair used is medical advice welcome, venting, does anyone else?, medical device & disability aids, and suspected and/or questioning.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!

Popular Topics in r/eds

#1

Struggling

30 posts
#2

Looking For A Doctor

17 posts
#3

Pain

13 posts
#4

Hate

10 posts
#5

Symptoms

8 posts
#6

Eds

7 posts
#7

Flare

6 posts
#8

Tired

5 posts
#9

Knee Brace

4 posts
#10

Heds

3 posts

Products Discussed in r/eds

#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review

Knee Brace

6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review

Toothbrush

6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review

Flair Used in r/eds

#1
Medical Advice Welcome
: "Is anybody else’s skin with this stretchy?"
16 posts
#2
Venting
: "unable to reliably swallow for weeks, slp send me to hospital…"
12 posts
#3
Does anyone else?
: "Anyone else have a caffeine intolerance?"
11 posts
#4
Medical Device & Disability Aids
: "Rollator decor?"
5 posts
#5
Suspected and/or Questioning
: "ALL EDS TYPES"
5 posts
#6
Newly Diagnosed
: "FINALLY OFFICIALLY DIAGNOSED"
3 posts
#7
Life Hacks & Tips
: "What are people doing for snacks when they have absolutely zero energy?"
3 posts
#8
All Victories Are Great Victories
: "Recognition"
2 posts
#9
Resources
: "Potential hEDS treatment?"
2 posts
#10
No Medical Advice Wanted
: "Anabolic steroids changed my life, and made me function almost normally. Ama"
1 post

Member Growth in r/eds

Yearly
+12k members(55.5%)

Similar Subreddits to r/eds

/r/AskDocs

r/AskDocs

825k members
14.0% / yr
/r/cfs

r/cfs

87k members
36.1% / yr
/r/covidlonghaulers

r/covidlonghaulers

89k members
22.1% / yr
/r/ehlersdanlos

r/ehlersdanlos

123k members
29.7% / yr
/r/Endo

r/Endo

107k members
24.5% / yr

r/Fibromyalgia

121k members
29.1% / yr
/r/Gastritis

r/Gastritis

51k members
26.5% / yr
/r/ibs

r/ibs

170k members
15.8% / yr

r/PsoriaticArthritis

27k members
30.2% / yr

r/rheumatoid

41k members
22.2% / yr

About

GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.

This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.

This data is synced periodically so insights stay current and useful for ongoing research.

Last updated: September 19, 2026