r/eds
36k members
r/eds is a subreddit with 36k members. The most common kinds of discussions are advice requests and pain & anger, and the community frequently discusses struggling, looking for a doctor, pain, hate, and flare, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Advice Requests
: "Anyone else's teeth feel like the are gonna fall out when sick?"
9 posts
#2
Pain & Anger
: "Anger!!Helplessness!! What to to.do"
8 posts
#3
Solution Requests
: "Looking for suggestions about thumb/ hand pain"
1 post
Popular Topics in r/eds
#1
Struggling
25 posts
#2
Looking For A Doctor
17 posts
#3
Pain
11 posts
#4
Hate
9 posts
#5
Flare
6 posts
#6
Eds
6 posts
#7
Symptoms
6 posts
#8
Knee Brace
4 posts
#9
Tired
4 posts
#10
Heds
3 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: "Wtf is this???"
28 posts
#2
Life Hacks & Tips
: "Tips for anyone struggling"
10 posts
#3
Venting
: "Have they met my mom?"
9 posts
#4
Does anyone else?
: "Do other people pay attention to your joints cracking/popping?"
8 posts
#5
Suspected and/or Questioning
: "Am I developing an eating disorder?"
6 posts
#6
Medical Device & Disability Aids
: "BOOTS!"
5 posts
#7
Genetic Testing
: "Do you have the TNXB c.7440delinsAC mutation? I’m researching it as a possible link to hEDS"
3 posts
#8
Community Shenanigans
: ""do you have eds? your vien feels like you do" *immediately blows my vein*"
1 post
#9
Newly Diagnosed
: "Heds"
1 post
Member Growth in r/eds
Yearly
+13k members(55.1%)
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About
GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.
This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.
This data is synced periodically so insights stay current and useful for ongoing research.
Last updated: October 1, 2026