r/eds
32k members
r/eds is a subreddit with 32k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses eds, pain, struggling, diagnosis, and symptoms, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "I am so over being in pain all the time!!"
1 post
#2
Advice Requests
: "How can i help recently diagnosed gf?"
1 post
Popular Topics in r/eds
#1
Eds
: "My official hEds evaluation is a week from today. I waited 5 years for this."
74 posts
#2
Pain
: "I am so over being in Pain all the time!!"
52 posts
#3
Struggling
45 posts
#4
Diagnosis
: "My official hEDS evaluation is a week from today. I waited 5 years for this."
20 posts
#5
Symptoms
: "is this the subreddit where we can talk about Symptoms?"
18 posts
#6
Looking For A Doctor
17 posts
#7
Skin
13 posts
#8
Hate
10 posts
#9
Joint
10 posts
#10
Heds
10 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: "phantom fevers"
44 posts
#2
Venting
: "I'm finding myself frustrated by misinformation spread by others with EDS"
37 posts
#3
Suspected and/or Questioning
: "Suspect CCI - X-rays “unremarkable”"
8 posts
#4
Medical Device & Disability Aids
: "Have they not invented a mattress for people with hypermobility?"
7 posts
#5
Life Hacks & Tips
: "Personal Hygiene on Hot No Spoons Days"
7 posts
#6
Newly Diagnosed
: "What do we think the new EDS/HSD criteria will be like for severe or atypical hEDS?"
5 posts
#7
[TW: SENSITIVE SUBJECT MATTER]
: "As someone who was diagnosed by a geneticist at a young age the way heds is now talked about is so different"
4 posts
#8
All Victories Are Great Victories
: "the results of my specialist appointment: i've been gaslit for 30 years, it actually is that bad, everything gets better now!"
4 posts
#9
Community Shenanigans
: "Totally normal photos from me as a kid definitely nothing wrong here"
3 posts
#10
[TW: MEDICAL TRAUMA]
: "Do Americans go to ER very often?"
2 posts
Member Growth in r/eds
Yearly
+13k members(65.2%)
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About
GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.
This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.
This data is synced periodically so insights stay current and useful for ongoing research.
Last updated: June 26, 2026