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r/eds
19k members
r/eds is a subreddit with 19k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Advice Requests
: "tested positive for vEDS. i’m so confused."
14 posts
#2
Pain & Anger
: "Anybody else have “am I going to have to deal with this forever” as a first reaction to random pain or sensations?"
10 posts
Popular Topics in r/eds
#1
Eds
: "Eds is a nightmare"
33 posts
#2
Pain
: "Anybody else have “am I going to have to deal with this forever” as a first reaction to random Pain or sensations?"
22 posts
#3
Diagnosis
: "Got a diagnoses finally, and and turned work into art therapy!"
7 posts
#4
Skin
: "Is imprints on Skin a hEDS things?"
5 posts
#5
Symptoms
: "Why do so many geneticists seem to have a distain for hEDS referral patients?"
5 posts
#6
Doctor
: "I had a good Doctors visit !!!"
4 posts
#7
Eds
: "tested positive for vEds. i’m so confused."
4 posts
#8
Joint Pain
: "Does your Joint Pain worsen before/during menstruation?"
4 posts
#9
Ribs
: "Rib Concerns"
4 posts
#10
Cellulite
: "Cellulite and itching?"
4 posts
Member Growth in r/eds
Yearly
+7k members(64.0%)
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