r/eds
36k members
r/eds is a subreddit with 36k members. The community frequently discusses struggling, looking for a doctor, pain, hate, and flare, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush, and the most common flair used is medical advice welcome, venting, does anyone else?, newly diagnosed, and life hacks & tips.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Topics in r/eds
#1
Struggling
25 posts
#2
Looking For A Doctor
17 posts
#3
Pain
11 posts
#4
Hate
9 posts
#5
Flare
6 posts
#6
Eds
6 posts
#7
Symptoms
6 posts
#8
Knee Brace
4 posts
#9
Tired
4 posts
#10
Heds
3 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: "Hip pain for about a month (29f)"
24 posts
#2
Venting
: "My partner comes here to complain about me and I’m so alone"
8 posts
#3
Does anyone else?
: "My hypermobile neck x-rays (without severe neck issues)"
8 posts
#4
Newly Diagnosed
: "Officially got clinical diagnosis of Hypermobile Ehlers-Danlos Syndrome with a 9/9 Beighton score."
5 posts
#5
Life Hacks & Tips
: "leg cramps while teaching"
4 posts
#6
Medical Device & Disability Aids
: "hEDS and wheelchairs? how do you know if you need one?"
3 posts
#7
Suspected and/or Questioning
: "I'm sick of the constant pain and being dismissed by the doctors. Is it resonable to think i have heds? What should I tell doctors to take me seriously?"
3 posts
#8
Resources
: ""Complicated" documentary"
1 post
#9
All Victories Are Great Victories
: "Extending some gratitude"
1 post
#10
Genetic Testing
: "Is gene testing worth it? Or is this normal for HEDS? (NEWLY DIAGNOSED)"
1 post
Member Growth in r/eds
Yearly
+13k members(54.0%)
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About
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This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.
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Last updated: November 1, 2026