r/eds
33k members
r/eds is a subreddit with 33k members. The community frequently discusses eds, pain, struggling, diagnosis, and symptoms, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush, and the most common flair used is medical advice welcome, venting, suspected and/or questioning, life hacks & tips, and medical device & disability aids.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Topics in r/eds
#1
Eds
74 posts
#2
Pain
52 posts
#3
Struggling
45 posts
#4
Diagnosis
20 posts
#5
Symptoms
18 posts
#6
Looking For A Doctor
17 posts
#7
Skin
13 posts
#8
Hate
10 posts
#9
Joint
10 posts
#10
Heds
10 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: ""Researchers Identify Previously Unrecognized Genetic Variants, *Patterns* Associated with Hypermobile Ehlers–Danlos Syndrome""
40 posts
#2
Venting
: "Life long symptoms i never knew about or considered."
30 posts
#3
Suspected and/or Questioning
: "Is my shoulder supposed to do this?"
13 posts
#4
Life Hacks & Tips
: "Tips for shaving without bleeding??"
10 posts
#5
Medical Device & Disability Aids
: "Have they not invented a mattress for people with hypermobility?"
6 posts
#6
[TW: SENSITIVE SUBJECT MATTER]
: "Bathroom issues.. Is this an EDS thing? Or is this a sign of something else?"
5 posts
#7
All Victories Are Great Victories
: "Where did basic medicine go?"
4 posts
#8
Newly Diagnosed
: "Got diagnosed after years of testing and being ignored, now I don’t know where to start"
4 posts
#9
Resources
: "This is really crazy! Do you have ADHD AND hEDS?!"
3 posts
#10
Community Shenanigans
: "Totally normal photos from me as a kid definitely nothing wrong here"
3 posts
Member Growth in r/eds
Yearly
+13k members(63.5%)
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About
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Last updated: July 24, 2026