r/eds
34k members
r/eds is a subreddit with 34k members. The community frequently discusses eds, pain, struggling, diagnosis, and symptoms, and they frequently recommend/review electric toothbrush, knee brace, and toothbrush, and the most common flair used is medical advice welcome, venting, life hacks & tips, suspected and/or questioning, and medical device & disability aids.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Topics in r/eds
#1
Eds
74 posts
#2
Pain
52 posts
#3
Struggling
45 posts
#4
Diagnosis
20 posts
#5
Symptoms
18 posts
#6
Looking For A Doctor
17 posts
#7
Skin
13 posts
#8
Hate
10 posts
#9
Joint
10 posts
#10
Heds
10 posts
Products Discussed in r/eds
Electric Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
4.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Knee Brace
6 reviews
#1
Ossur
3.5★ from 2 reviews
#2
Shock Doctor
4.0★ from 1 review
#3
KT Pro
5.0★ from 1 review
Toothbrush
6 reviews
#1
Philips Sonicare
5.0★ from 3 reviews
#2
Oral B
5.0★ from 2 reviews
#3
Curaprox
4.0★ from 1 review
Flair Used in r/eds
#1
Medical Advice Welcome
: "teeth ???"
60 posts
#2
Venting
: "Can anyone else relate?"
23 posts
#3
Life Hacks & Tips
: "my hand P.T exercises in case you are also on a monthlong waitlist"
11 posts
#4
Suspected and/or Questioning
: "Wait its not supposed to be that way?"
10 posts
#5
Medical Device & Disability Aids
: "It might not be EDS"
7 posts
#6
All Victories Are Great Victories
: "My ring splint set is complete!! (covered by insurance)"
6 posts
#7
[TW: SENSITIVE SUBJECT MATTER]
: "Radio New Zealand series on EDS"
6 posts
#8
Community Shenanigans
: "Can you tell that Friday walk threw me out?"
5 posts
#9
Resources
: "For those looking for hEDS/HSD and related comorbidity relief or better communication with your doctor(s):...."
3 posts
#10
Genetic Testing
: "Negative genetic panel result"
3 posts
Member Growth in r/eds
Yearly
+13k members(62.6%)
Similar Subreddits to r/eds
r/AskDocs
814k members
13.5% / yr
r/cfs
84k members
35.5% / yr
r/DiagnoseMe
72k members
29.0% / yr
r/DoctorsAdvice
13k members
40.4% / yr
r/ehlersdanlos
120k members
30.0% / yr
r/HPylori
18k members
33.7% / yr
r/Hypermobility
43k members
62.8% / yr
r/IBD
30k members
12.4% / yr
r/PsoriaticArthritis
27k members
30.4% / yr
r/rheumatoid
40k members
22.1% / yr
About
GummySearch helps people research Reddit communities by organizing activity, growth, themes, and post-level signals into one place.
This page gives a focused view of r/eds, including current member size, discussion patterns, product reviews, and related communities to explore.
This data is synced periodically so insights stay current and useful for ongoing research.
Last updated: August 9, 2026