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r/ehlersdanlos is a subreddit with 88k members. Its distinguishing qualities are that the community is large in size, and has high activity.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
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https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
Popular Themes in r/ehlersdanlos
#1
Pain & Anger
: "Hematologist straight up lied?"
20 posts
#2
Advice Requests
: "How to deal with a doctor that doesn’t believe in hEDS"
6 posts
#3
Solution Requests
: "Compression Garments for Men with hEDS"
1 post
#4
Money Talk
: "EDS is expensive 😭🙏"
1 post
Popular Topics in r/ehlersdanlos
#1
Pain
: "PSA If you take gabapentin for Pain, make sure you're checking your blood oxygen levels at night."
30 posts
#2
Eds
: "When should I disclose vEds to my partner?"
24 posts
#3
Eds
: "New research study on hEds and HSD by the Norris Lab!"
24 posts
#4
Diagnosis
: "I got a Diagnosis! and it was easy!!!"
14 posts
#5
Exercise
: "If someone tells me to Exercise one more time, I will go mad."
8 posts
#6
Heds
: "Why do so many geneticists seem to have a distain for Heds referral patients?"
7 posts
#7
Sleep
: "How do you not Sleep on your stomach?"
6 posts
#8
Symptoms
: "Does menstruation worsen anyones Symptoms?"
6 posts
#9
Mobility
: "Mobility aid activated!"
6 posts
#10
Doctor
: "How to deal with a Doctor that doesn’t believe in hEDS"
5 posts
Member Growth in r/ehlersdanlos
Yearly
+24k members(37.7%)
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