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r/ehlersdanlos is a subreddit with 77k members. Its distinguishing qualities are that the community is large in size, and has high activity.
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
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Feedback Forms:
https://www.reddit.com/r/ehlersdanlos/s/fwQN2A4c2n
Popular Themes in r/ehlersdanlos
#1
Pain & Anger
: "I'm so tired of PT"
34 posts
#2
Advice Requests
: "How do I explain to my sister that she is actively hurting my nieces?"
13 posts
#3
Solution Requests
: "I got a robot vacuum/mop and it’s worth every penny!"
4 posts
#4
News
: "FINALLY GOT A DIAGNOSIS"
2 posts
Popular Topics in r/ehlersdanlos
#1
Eds
: "Whoever said to sleep with a squishmallow to relieve Eds neck pain"
101 posts
#2
Pain
: "best Pain medication=hyperfocus"
57 posts
#3
Frustrating
50 posts
#4
Hate
49 posts
#5
Made
46 posts
#6
Expensive
26 posts
#7
Worst
17 posts
#8
Diagnosis
14 posts
#9
Splints
9 posts
#10
Video
6 posts
Member Growth in r/ehlersdanlos
Daily
+50 members(0.1%)
Monthly
+1k members(1.9%)
Yearly
+21k members(38.8%)
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