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r/Narcolepsy is a subreddit with 33k members. Its distinguishing qualities are that the community is large in size, and has high activity.
The online community for those who either have Narcolepsy or Idiopathic Hypersomnia or have a family member with one of these diagnoses. We are not here to diagnose or confirm your self-diagnosis. We have a wiki section about Narcolepsy which may help those who suspect they suffer from a sleep disorder such as Narcolepsy but we are not a substitute for seeing a doctor.
Popular Themes in r/Narcolepsy
#1
Pain & Anger
: "Dealing with people's reactions when you tell them you have narcolepsy "
32 posts
#2
Advice Requests
: "How do you advocate for yourself when your medication is no longer as effective as it used to be?"
9 posts
#3
Solution Requests
: "Narcolepsy without involuntary sleep episodes?"
6 posts
#4
Money Talk
: "Xywav no longer treated as a specialty med by my insurance in 2025, will costs $6k/month"
1 post
Popular Topics in r/Narcolepsy
#1
Narcolepsy
: "Narcolepsy + ADHD is…"
82 posts
#2
Sleep
: "What caused you to realize your Sleepiness wasn’t normal or just your personality?"
37 posts
#3
Medication
: "How do you advocate for yourself when your Medication is no longer as effective as it used to be?"
18 posts
#4
Xywav
: "Xywav no longer treated as a specialty med by my insurance in 2025, will costs $6k/month"
16 posts
#5
Cataplexy
: "I am struggling so much without Xywav, I just woke up after 17 hours of sleep (narcolepsy w/ Cataplexy by the way)"
14 posts
#6
Diagnosis
: "(IH) I thought a Diagnosis would finally make friends and family take my condition seriously "
13 posts
#7
Mslt
: "Mslt data that confirmed my diagnosis in 2019"
8 posts
#8
Sodium Oxybate
: "What Sodium Oxybate actually changed for me"
6 posts
#9
Sleep Study
: "They want me to do another Sleep Study 14 yrs later"
5 posts
#10
Insurance
: "Xywav no longer treated as a specialty med by my Insurance in 2025, will costs $6k/month"
5 posts
Member Growth in r/Narcolepsy
Daily
+10 members(0.0%)
Monthly
+545 members(1.7%)
Yearly
+6k members(22.6%)
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