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r/eds
15k members
r/eds is a subreddit with 15k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "do you guys get pain/hypermobile here"
18 posts
#2
Advice Requests
: "Partner Does Not Listen"
11 posts
#3
Solution Requests
: "Found a damn good physical therapist"
3 posts
Popular Topics in r/eds
#1
Eds
: "I have Eds"
34 posts
#2
Diagnosis
: "This is WHY a Diagnosis is so important!"
17 posts
#3
Pain
: "do you guys get Pain/hypermobile here"
16 posts
#4
Symptoms
: "I’m having neurological Symptoms…"
11 posts
#5
Hypermobility
: "Anyone else with scoliosis?"
6 posts
#6
Joints
: "Anyone else have Joints that just say "no" to working"
5 posts
#7
Pt
: "Concerned about Pt"
5 posts
#8
Eds
: "Apparently you can’t have hEds along with any autoimmune diseases?"
5 posts
#9
Sleep
: "Why don't we Sleep well?"
4 posts
#10
Fatigue
: "Chronic Fatigue sucks"
4 posts
Member Growth in r/eds
Daily
+23 members(0.2%)
Monthly
+703 members(5.0%)
Yearly
+3k members(26.9%)
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