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r/eds
17k members
r/eds is a subreddit with 17k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "Should compression"
19 posts
#2
Advice Requests
: "What's the deal with EDS gender differences?"
18 posts
#3
Solution Requests
: "I made a cane!"
4 posts
#4
News
: "NHL player announces early retirement due to EDS"
1 post
Popular Topics in r/eds
#1
Eds
: "this is what some people look like asking if they have Eds"
44 posts
#2
Pain
: "Anybody else have “am I going to have to deal with this forever” as a first reaction to random Pain or sensations?"
13 posts
#3
Diagnosis
: "Diagnosis"
7 posts
#4
Symptoms
: "One of my earliest Symptoms: Always feeling like my body was “off”, “weird” or “wrong”"
6 posts
#5
Pots
: "Can you have another subtype of EDS besides hEDS and still present with the MCAS & Pots comorbidities?"
5 posts
#6
Joints
: "Y'all also gotta throw your Joints into place?"
5 posts
#7
Joint
: "How do you tell if you sublux a Joint?"
4 posts
#8
Skin
: "Is imprints on Skin a hEDS things?"
4 posts
#9
Shoulder
: "Shoulder pain?"
4 posts
#10
Flare
: "When I Flare up…."
3 posts
Member Growth in r/eds
Yearly
+5k members(42.8%)
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