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r/eds
20k members
r/eds is a subreddit with 20k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "GOT SCAMMED BY ZEBRASPLINTS"
3 posts
#2
Advice Requests
: "Has anyone figured out out the cause of their pain when sitting?"
1 post
Popular Topics in r/eds
#1
Eds
: "All the problems I ever had were due to chronic illness hEds"
33 posts
#2
Pain
: "Has anyone figured out out the cause of their Pain when sitting?"
22 posts
#3
Diagnosis
: "How did you get diagnosed?"
7 posts
#4
Skin
5 posts
#5
Symptoms
: "Why do so many geneticists seem to have a distain for hEDS referral patients?"
5 posts
#6
Doctor
: "I had a good Doctors visit !!!"
4 posts
#7
Eds
4 posts
#8
Joint Pain
4 posts
#9
Ribs
: "Rib Concerns"
4 posts
#10
Cellulite
: "Cellulite and itching?"
4 posts
Member Growth in r/eds
Yearly
+9k members(74.3%)
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