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r/eds
16k members
r/eds is a subreddit with 16k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "The pain is real"
19 posts
#2
Advice Requests
: "What's the deal with EDS gender differences?"
13 posts
#3
Solution Requests
: "I made a cane!"
6 posts
#4
News
: "NHL player announces early retirement due to EDS"
1 post
Popular Topics in r/eds
#1
Eds
: "this is what some people look like asking if they have Eds"
62 posts
#2
Pain
: "The Pain is real"
37 posts
#3
Diagnosis
: "Diagnosis"
36 posts
#4
Symptoms
: "One of my earliest Symptoms: Always feeling like my body was “off”, “weird” or “wrong”"
13 posts
#5
Hypermobility
: "Fascia and Proprioception in Hypermobility and EDS"
9 posts
#6
Joints
: "Y'all also gotta throw your Joints into place?"
9 posts
#7
Doctor
: "What's the point of being referred to a Doctor if they won't do anything for you?"
9 posts
#8
Mobility
7 posts
#9
Shoulder
: "Shoulder pain?"
6 posts
#10
Joint
: "Omg my Joints- sleeping is awful"
6 posts
Member Growth in r/eds
Yearly
+4k members(38.3%)
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