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r/eds
19k members
r/eds is a subreddit with 19k members. Its distinguishing qualities are that the community is large in size, and has high activity.
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Popular Themes in r/eds
#1
Pain & Anger
: "One of my earliest symptoms: Always feeling like my body was “off”, “weird” or “wrong”"
18 posts
#2
Advice Requests
: "What's the deal with EDS gender differences?"
15 posts
#3
News
: "NHL player announces early retirement due to EDS"
1 post
Popular Topics in r/eds
#1
Eds
: "Eds is a nightmare"
41 posts
#2
Pain
: "Anybody else have “am I going to have to deal with this forever” as a first reaction to random Pain or sensations?"
21 posts
#3
Symptoms
: "One of my earliest Symptoms: Always feeling like my body was “off”, “weird” or “wrong”"
12 posts
#4
Support
: "Please help me Support my wife with hEDS"
11 posts
#5
Mobility
11 posts
#6
Diagnosis
: "Got a diagnoses finally, and and turned work into art therapy!"
10 posts
#7
Hypermobility
: "Pushing your Hypermobility to feel something"
10 posts
#8
Joints
: "Y'all also gotta throw your Joints into place?"
9 posts
#9
Skin
: "Is imprints on Skin a hEDS things?"
7 posts
#10
Doctors
: "For those with hEDS: do you feel like your Doctors and healthcare providers treat you worse or differently than people with other diagnoses/health conditions (including other types of EDS)?"
7 posts
Member Growth in r/eds
Yearly
+7k members(61.0%)
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