r/vulvodynia
16k members
r/vulvodynia is a subreddit with 16k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses vulvodynia, pain, struggling, tired, and advice, and they frequently recommend/review underwear, antihistamines, and body wash.
A place for individuals (however they identify) with vulvodynia to share stories, give and receive advice and support. This subreddit is dedicated to providing information and being a supportive space, as well as raising awareness.
Please note that this subreddit is not a substitute for a proper diagnosis. If you are experiencing vulval pain, please see a doctor specialising in vulval conditions. You can find advice in the sidebar about diagnosis and treatment.
Popular Themes in r/vulvodynia
#1
Pain & Anger
: "I don’t want to be here anymore"
35 posts
#2
Advice Requests
: "Cured!! (B12 deficiency)"
21 posts
#3
Solution Requests
: "A cheap bullet vibrator has been the best at home treatment I’ve found yet"
5 posts
Popular Topics in r/vulvodynia
#1
Vulvodynia
: "It wasn’t Vulvodynia all along. UREAPLASMA UREALYTICUM"
124 posts
#2
Pain
: "I can’t live with this Pain"
102 posts
#3
Struggling
: "PLEASE ADVOCATE FOR YOURSELF UNTIL YOU GET TO THE ROOT CAUSE!!!! MU STORY sorry it’s long but please read. And if anyone has had a biopsy before how long does the pain last?"
54 posts
#4
Tired
: "PLEASE ADVOCATE FOR YOURSELF UNTIL YOU GET TO THE ROOT CAUSE!!!! MU STORY sorry it’s long but please read. And if anyone has had a biopsy before how long does the pain last?"
33 posts
#5
Advice
: "Advice Needed, Best Path Forward"
24 posts
#6
Doctor
: "I found a Doctor!"
19 posts
#7
Pelvic
: "What's the most helpful external work a Pelvic physio has done for you?"
18 posts
#8
Treatment
: "A cheap bullet vibrator has been the best at home Treatment I’ve found yet"
17 posts
#9
Sex
: "How are you all still having Sex???"
16 posts
#10
Cream
15 posts
Products Discussed in r/vulvodynia
Underwear
5 reviews
#1
Aerie
5.0★ from 1 review
#2
Jockey
4.0★ from 1 review
#3
Bambody
4.0★ from 1 review
Antihistamines
2 reviews
#1
Loratadine
4.0★ from 1 review
#2
Allegra
4.0★ from 1 review
Body Wash
2 reviews
#1
Deumavan
3.0★ from 1 review
#2
Ethique
4.0★ from 1 review
Flair Used in r/vulvodynia
#1
Support/Advice
: "Burn after peeing resolved - maybe my story helps someone."
51 posts
#2
Vent
: "Posted a picture of my vulva for vulvodynia and lichen sclerose and men are asking for picture wtfff"
15 posts
#3
Progress
: "My vulvodynia might have been yeast/candida this whole time?"
8 posts
#4
TRIGGER WARNING - self harm/related thoughts
: "I don’t want to be here anymore"
8 posts
#5
TRIGGER WARNING
: "I can’t live with this anymore"
3 posts
#6
Partner Question
: "Anyone else notice that stress seems to make vulva symptoms worse?"
3 posts
#7
Success
: "Two Year Update and Successes"
2 posts
#8
Information
: "ditch the dang toilet paper"
2 posts
#9
Progress&answers
: "PLEASE ADVOCATE FOR YOURSELF UNTIL YOU GET TO THE ROOT CAUSE!!!! MU STORY sorry it’s long but please read. And if anyone has had a biopsy before how long does the pain last?"
1 post
#10
News
: "PSA: new study for vulvodynia currently recruiting in the UK!!"
1 post
Member Growth in r/vulvodynia
Yearly
+3k members(26.2%)
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About
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Last updated: June 15, 2026