r/vulvodynia

17k members
r/vulvodynia is a subreddit with 17k members. The most common kinds of discussions are pain & anger and advice requests, and the community frequently discusses vulvodynia, pain, struggling, tired, and advice, and they frequently recommend/review underwear, antihistamines, and body wash.
A place for individuals (however they identify) with vulvodynia to share stories, give and receive advice and support. This subreddit is dedicated to providing information and being a supportive space, as well as raising awareness. Please note that this subreddit is not a substitute for a proper diagnosis. If you are experiencing vulval pain, please see a doctor specialising in vulval conditions. You can find advice in the sidebar about diagnosis and treatment.

Popular Themes in r/vulvodynia

#1
Pain & Anger
: "I don’t want to be here anymore"
18 posts
#2
Advice Requests
: "Burn after peeing resolved - maybe my story helps someone."
9 posts
#3
Solution Requests
: "Can we start a thread where people list the ointments they have tried to deal with the irritation/itchiness?"
2 posts

Popular Topics in r/vulvodynia

#1

Vulvodynia

: "I cured my Vulvodynia!"
124 posts
#2

Pain

: "Pain reprocessing therapy?"
102 posts
#3

Struggling

: "Ongoing vulvar burning and irritation"
54 posts
#4

Tired

33 posts
#5

Advice

24 posts
#6

Doctor

: "I found a Doctor!"
19 posts
#7

Pelvic

: "What's the most helpful external work a Pelvic physio has done for you?"
18 posts
#8

Treatment

: "NEW Treatment RESEARCH STUDIES FOR LICHEN SCLEROSUS AND VULVODYNIA"
17 posts
#9

Sex

16 posts
#10

Cream

15 posts

Products Discussed in r/vulvodynia

Underwear

5 reviews
#1
Aerie
5.0 from 1 review
#2
Jockey
4.0 from 1 review
#3
Bambody
4.0 from 1 review
#1
Loratadine
4.0 from 1 review
#2
Allegra
4.0 from 1 review

Body Wash

2 reviews
#1
Deumavan
3.0 from 1 review
#2
Ethique
4.0 from 1 review

Flair Used in r/vulvodynia

#1
Support/Advice
: "Burn after peeing resolved - maybe my story helps someone."
48 posts
#2
Vent
: "Posted a picture of my vulva for vulvodynia and lichen sclerose and men are asking for picture wtfff"
18 posts
#3
Progress
: "A story of hope in navigating vulvodynia"
5 posts
#4
Success
: "Two Year Update and Successes"
4 posts
#5
Information
: "Birth control can cause vulvodynia!"
3 posts
#6
Partner Question
: "Anyone else notice that stress seems to make vulva symptoms worse?"
3 posts
#7
TRIGGER WARNING - self harm/related thoughts
: "I don’t want to be here anymore"
2 posts
#8
TRIGGER WARNING
: "I can’t live with this anymore"
2 posts
#9
Undiagnosed
: "Vulvodynia sufferers due to nerve pain - what does that pain feel like to you?"
2 posts
#10
News
: "PSA: new study for vulvodynia currently recruiting in the UK!!"
1 post

Member Growth in r/vulvodynia

Yearly
+3k members(25.5%)

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About

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Last updated: July 20, 2026